Chatty Catch Up (COVID, School, Keeping Busy, and Health Update)!

 I've been really busy with work this week and getting ready to go on vacation next week, so we're doing a quick, chatty blog post today with no real rhyme or reason, but sometimes those are the best ones :)

I first just have to say that summer is going by SO FAST! I feel like I just got out of school, which was at the beginning of May, and now I'm starting to prepare to go back to school. Although I am very excited to go back to school with hopefully fewer COVID restrictions than last year, of course, I will follow anything they ask us to do if it means I get to go to class in person. Luckily I go to a small school, so it is a little bit easier to manage and mitigate the spread of the disease. My school is also requiring the vaccine for everyone unless they have a medical or religious exemption. I know that is a controversial topic, but I honestly appreciate it being immunocompromised. How is your school/work handling the vaccine? If you are immunocompromised, are you happy with their decision?

That brings me to my next point. It's now being speculated that the CDC is going to recommend we start wearing masks again even if we are vaccinated. I honestly don't know how I feel about this, but I always want to be as safe as possible, so I'm just going to follow whatever the experts say to do. 

Switching gears, I've been thinking a lot about the fall semester and how much I've agreed to take on and it is honestly very daunting. I'm in four clubs at school and I have a leadership role in all of them. I'm starting my volunteer work as a peer health educator which I'm very excited about. I get to move in early and start all the training for that in only a few weeks! I'm hoping to get my job back this semester as well. I have student employment as a receptionist, but I wasn't able to work all of last year because my office wasn't able to physically distance. Then finally, I agreed to stay on with my internship this fall! While this is many things I've agreed to do on top of school work, I love all of them and can't imagine giving any of them up, so we're just going to make it work. 

I find that keeping myself busy is actually a very effective form of pain management and I've used it since I was diagnosed with endometriosis at the beginning of high school. It sounds so weird and I don't know if anyone else is the same way, but I feel like I feel worse when I'm just sitting around doing nothing. I think it's because I can actually focus on my body and not just ignore the pain since I'm so busy. 

I've still been working hard at pelvic floor physical therapy this summer while I'm home. I have all my PT tasks I have to do every day written on my to-do list so I can make sure I'm getting them done. (Side note, I seriously cannot live without a to-do list now. It's kind of a problem but a good problem). Just like in the winter, I'm hoping to make even more progress before going back to school. I said this on my Instagram, but I finally brought up my tailbone pain to my primary care doctor and she referred me to an orthopedist! I'm in the process of having all my medical notes sent over from my pelvic floor physical therapist and my chiropractor, then I'll be all set for my appointment toward the middle of next month. I'm feeling hopeful because I will probably be able to get an x-ray and MRI so we can pinpoint the issue.

I think I've talked long enough and you've all gotten the rundown on my life as of right now, so thank you for reading if you've made it to this point, and feel free to DM me if we want to chat about anything!

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Instagram: @endoisnottheendblog

Twitter: @endoisnothend

Facebook: Endo Is Not the End

WHAT IS CUPPING THERAPY?

 

Many of you have heard me talk about cupping therapy (or cupping) here and on my Instagram, but I've learned that most people don't know what it is. I was first introduced to cupping when Michael Phelps made it popular by putting his circular bruises on display at the Olympics. 

Cupping is a form of alternative medicine that has become popular over the last few years. I started using this method in pelvic floor physical therapy over the winter to help with inflammation and pain management in my back and tailbone. Still, people use it for many different reasons. So you can get a better understanding of cupping, and why it's helpful, I'm going to bring you through the basics.

WHAT IS CUPPING THERAPY?

Cupping therapy is an ancient form of alternative medicine that originated in China.

HOW DOES CUPPING WORK?

A therapist will put special cups on specified spots and create a suction to the skin and leave them there for however long they deem necessary. 

WHY DO PEOPLE USE CUPPING THERAPY?

There are many different reasons why people use cupping therapy, including:

• Pain
• Inflammation
• Blood flow
• Relaxation and well-being
• Muscle tightness

It has been compared to a deep tissue massage.

DOES IT HURT?

I decided to include this question because looking at pictures of cupping can be pretty offputting, so I wanted to share my experience. There are many different suction levels, so you must communicate with your therapist about what is too much, too little, and just right suction for you. However, if you are really trying to get the full effects of the cups, you can put them on a little tighter, and it will hurt at first, but after 30-60 seconds, the pain will go away. I haven't gotten up to the level of bruising you see on Michael Phelps; in fact, I've only ever had bruising one time because everybody is different and can only tolerate so much. But the goal is to add a little more suction each time so you can make progress.

WHAT DOES RESEARCH SHOW?

While there needs to be more and better research done on cupping, it has been known to help those with:

• Blood disorders 
• Rheumatic diseases
• Fertility
• Skin problems 
• High blood pressure
• Migraines
• Anxiety and depression
• Bronchial congestion
• Varicose veins 
• Overall muscle relaxation

Cupping therapy definitely isn't for everybody, but if you are looking for another method of pain management, I certainly recommend it! I always leave my appointments feeling so relaxed and in a lot less pain. But remember to always drink a lot of water after because it's sucking a lot of toxins out of your body. 

Source: https://www.webmd.com/balance/guide/cupping-therapy

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Instagram: @endoisnottheendblog

Twitter: @endoisnothend

Facebook: Endo Is Not the End

WORKING 9-5 WITH CHRONIC PAIN

 

Working 9 to 5 is something brand new to me that I started last week. I'm working two jobs this summer so obviously, I've had to learn how to manage this. Working 9 to 5 for the first time is challenging for everyone, but then you add in having to deal with chronic pain and it makes adjusting to this new schedule a lot harder. I want to preface this by saying that I love both of my jobs and I can't wait for the rest of the summer because I'm so lucky to be in both positions! However, sitting at my desk for hours on end isn't the best for my pelvic floor region. 

My whole life up to this point I've imagined myself as having a desk/office job in the future because due to my chronic pain, being on the move isn't my favorite thing. Now that I'm sitting at a desk in my bedroom for many hours a day, I might need to reevaluate that vision for myself. I think my ideal situation is where I can sit when I want to and move around when I want to because my body needs both of those things to keep everything in check. Although sitting at a desk isn't the most comfortable thing in the world, I've discovered a few things that have helped me make the best of the situation. 

The first is a laptop stand. This allows you to prop up your laptop so it's at eye level and you aren't breaking your back hunching over it all day. I got mine at the beginning of last semester and I think it's one of my favorite purchases ever. I'm still sitting in front of the computer for the same amount of time, but my back and neck feel SO much better. 

The second tool that has been so incredibly helpful to me for years is blue light glasses. These block out the harmful blue light coming from your computer or other electronic devices and makes having to stare at them all day way easier on the eyes. I used to get headaches all the time from blue light, but I don't anymore because of these glasses!

The third thing is a seat cushion. As I've mentioned here a few times, I've had an injured tailbone for about a year now, so seat cushions are an essential part of my everyday life. I use one on my desk chair at home and school, as well as one in my car. Even if you don't have tailbone or back issues, a seat cushion can still be really helpful for all-around comfort. 

And finally, the items I have purchased most recently, a mouse and mousepad. Not just any mousepad though, one with wrist support so you don't do any damage while using your mouse all day. This is the first time I've actually used a mouse with a laptop, but it's been so helpful because it allows me to sit up straight in my chair and not have to hunch over the mousepad built into my laptop. 

I'm really curious, so let me know on here or over on my Instagram, but how do you work while also dealing with chronic pain? I'm open to any and all suggestions!

Follow me on social media!

Instagram: @endoisnottheendblog

Twitter: @endoisnothend

Facebook: Endo Is Not the End

WHAT IS IBS?

Today I'm going to spread some light on another disease that often comes hand-in-hand with endometriosis. Patients are often misdiagnosed with irritable bowel syndrome, or IBS, when they actually have endometriosis because they have similar symptoms. However, this is another factor that contributes to the prolonging of finally getting an endometriosis diagnosis. So, what is IBS?

Definition:

"Irritable bowel syndrome (IBS) is a common disorder that affects the large intestine. Signs and symptoms include cramping, abdominal pain, bloating, gas, and diarrhea or constipation, or both. IBS is a chronic condition that you'll need to manage long-term."

Symptoms:

• Abdominal pain
• Cramping 
• Bloating
• Increased gas
• Changes in appearance to bowel movement
• Changes in how often one has a bowel movement 
• Weight loss diarrhea

Cause:

• Muscle contractions in the intestine 
• Abnormalities to the nerves that help with digestion 
• Severe infection
• Early life stress
• Changes in gut microbes 

Triggers:

• Certain foods such as dairy products 
• Stress

Risk Factors:

• Young 
• Female
• Family history with IBS
• Have anxiety, depression, or other mental health-related problems

Cure:

IBS is a chronic condition that cannot be cured, very similar to endo. 

Treatments:

• Diet changes 
• Medications
• Therapies 

Follow me on social media!

Instagram: @endoisnottheend

Twitter: @endoisnothend

Facebook: Endo Is Not the End 

Source: https://www.mayoclinic.org/diseases-conditions/irritable-bowel-syndrome/symptoms-causes/syc-20360016 

How To Be a Good Advocate on Social Media (And Make Meaningful Connections to Your Audience)

 If there is one thing the world always needs more of, it's advocates. No matter the issue, meaningful work, and change simply don't get done without advocates and people pushing for that change to happen. About five years ago, with the persuasion of my family, I started this blog. It is the best thing that could have ever come out of being diagnosed with endometriosis because now I get to share my experience and knowledge with all of you! Some of you may want to do the same thing, but don't know how to start, which is why today I'm sharing tips on how to be a good advocate on social media while also making meaningful connections with your audience! 

1. Post either daily or as much as possible: The algorithms on social media are weird, but the more you post, the more it will spread your posts to a wider audience.
2. Use relevant hashtags: Hashtags are a great way to spread your posts to a wider audience that maybe wouldn't have seen it otherwise since they don't follow you. 
3. Follow other accounts that post similar things as you: If you follow other similar accounts, you can help grow both audiences and reach more people with your advocacy.
4. Share what you believe: As someone with a chronic illness trying to spread awareness about it, I have always found it important to share my own truth and lived experience. A lot of social media is fake and many people only share the good moments, but I like to show the good, the bad, and everything in between because there is a huge spectrum when living with a chronic illness. 
5. Use all forms of social media to spread your message: I use Instagram, Facebook, Twitter, and this blog to spread my message. I find that this way I can reach different demographics and age groups. Along with this, use all the media forms within each app. For example, on Instagram, I do regular posts, stories, reels, and videos to get my voice out there. 
6. Show your personality through your posts: You don't want your audience to find the information you're sharing to be boring, so put your own voice into it and make it interesting! 
7. Similar to #6, use plain language: You want to get information out to people in an accessible way. Most people aren't going to want to read something that's super sciency and hard to understand. 
8. BE YOURSELF: You will get people hooked on your posts by being yourself, so don't be afraid to do so!

If you've been thinking about starting a blog or social media account for something you're passionate about, this is your sign!! These tips don't just apply to chronic illness and health-related topics, you can use them for anything you are passionate about. Social media is such a great place to be able to share what you believe with a large number of people, and who knows, maybe you'll even meet new friends that way because I know I have! 

Follow me on social media!

Instagram: @endoisnottheendblog

Twitter: @endoisnothend

Facebook: Endo Is Not the End

Being In Tune with Your Body

    It's been a little over five years since I was diagnosed with endometriosis, but I started fighting for my health long before that. When you struggle with a chronic illness that causes you to have chronic pain, you start to know your body on a deeper level than a person who doesn't have those struggles. Since you're trying to do everything you can to prevent pain, you know exactly what foods trigger your symptoms, what activities could be pushing you too much, how much sleep you need to get, certain ways you need to sit, stand, and walk, the list goes on and on. But the bottom line is, especially being a woman, I've had to fight for my voice to be heard and in order to do that, I had to become very in tune with my body. 

    Whenever I go to my variety of doctor's appointments, the nurses and doctors are always shocked at how well I know everything that's happening in my body and how I can pinpoint (most of the time) what is causing me to have symptoms. I tell them that I don't have a choice in the matter living with a chronic illness. Now, this isn't me bragging. I wish I didn't have to do this, but through experience, I know I won't get answers unless I bring suggestions with me to the appointment. Like I've mentioned before on here, I keep a health journal where I write everything I eat during the day, any pelvic pain I'm having, if I made a bowel movement, my stress level, any bladder pain, exercise, and an "other" column for other information I want to add. I do this because if I start having pain, I can look back and try to see if I can determine the cause. It also serves as evidence that I can bring to an appointment to back up my findings. 

    Being in tune with my body has helped me a lot, especially in the last year, but it's honestly exhausting. Having to pay attention and take note of every little thing you do in the day isn't fun and it takes up a lot of time and mental capacity. However, I'm willing to do it because it has helped me get accommodations through school, figure out the cause of my bladder problems, and start to figure out how to heal my injured tailbone, just to name a few. While I hope one day I won't have to do this because medical professionals will just believe me without me having to do their job for them, it is something that works for me right now and I encourage all of you to keep a health journal if you are able. 

Keep fighting, you got this, and remember, endo is not the end!

Follow me on Instagram: @endoisnottheendblog

Things You Should NEVER Say to Someone with Endo

 Sometimes it's hard to know what to say to someone struggling with a chronic illness, so today I'm going to give you some insight into what NOT to say to someone with endometriosis. 

1. Anything related to pregnancy: You never know what someone might be struggling with or if they even want kids, so it's best to avoid the subject unless they bring it up. 
2. You don't look sick: People with invisible illnesses often have to hide what they're feeling, so just because we don't look sick, doesn't mean we're not. 
3. Just get a hysterectomy: A hysterectomy, or removing the uterus, is actually not a cure for endometriosis. 
4. Shouldn't you be cured since you got surgery?: While the surgery can make us feel a lot better, there is still no cure.
5. At least it's not [insert more severe illness here]: Even though there are diseases worse than endo, you do not want to invalidate or lessen what anyone is feeling. 
6. Just take Advil: Endo pain is often a lot worse than what Advil can fix and saying this can once again invalidate how we are feeling. 
7. I get bad period cramps too: Endometriosis is a lot more than bad period cramps. It is a whole-body disease that causes excruciating pain throughout the entire month. 
8. Someone I know tried this and now they are cured: Once again, there is no cure for endo so bringing up stuff like this is not helpful at all. 
9. Have you tried this diet?: While some diets can be helpful for some people, they are not helpful for everybody. Whenever I talk about the diets I try to stick to, I try to make it clear that this is what has worked for me and I know that it won't work for everyone. 
10. Isn't period pain normal?: While light period cramping is normal, excruciating pain during your period and pain throughout the entire month is not normal. One of the major reasons why it takes people so long to get diagnosed with endo is because we are taught that really bad period cramping is normal when in reality, it's not. 

I hope this post was able to give you some insight into how to talk to someone with endometriosis about their illness. If you think something you say could be taken the wrong way in any situation, it's best not to say it.