End of Semester Update!

 I'm back everyone and I apologize for my absence this past semester! I think it has been a crazy time for most people, especially those who are back to school and work after being at home for so long. Since my college required COVID vaccines, masks indoors, and weekly tests, we were able to get mostly back to normal, which means I was very busy. I was taking some hard classes, I was a student leader in four different groups, and I continued my summer internship into the fall. I'm not complaining though, because like I've said before, I actually really enjoy being busy because it takes my mind off of my endometriosis and other health problems. Now that COVID is ramping up again with the new variant, I'm very happy to be safe at home, fully vaccinated, and boosted. 

A lot of exciting things happened for me this semester! The most exciting is that I was accepted into an internship program at my school that is going to allow me to intern full-time in Boston during the Spring semester for school credit rather than taking classes. I always wanted to do this internship program in Washington D.C. as I am a political science major, but when it came time to apply, I realized that I haven't had a normal year of college yet and I don't want to leave campus for a whole semester. The Boston program allows me to live on campus and still participate in all my extracurricular activities while getting to commute into Boston during the day and get that real-world experience. After I was accepted into that program, I had to apply for internships. This process takes a lot of time from searching to applying to interviewing. I was lucky enough to get a few offers and I accepted an internship that I'm super excited about and I think is going to give me the clarity I need moving forward with my career. 

I did work full-time during the summer, but that work was mostly remote. Commuting into a big city every day is going to be a whole new experience and I will definitely share my experience here will all of you. I am definitely nervous about how this internship is going to affect my endometriosis pain. Anxious nerves and stress often cause flare-ups of my pain. Over the summer if that happened, I could just take a quick break to lay in my bed, however, I won't be able to do that this time around. Although don't get me wrong, I am very happy and grateful that this experience will be in-person after experiencing the pandemic for almost two years. I'm sure a lot of you reading this have full-time and in-person jobs, so I'm very curious, how do you handle your pain? 

I have been lucky this semester that my endometriosis pain has been mostly manageable! I had a few flare-ups here and there, but they didn't last very long. The combination of medication and pelvic floor physical therapy has really worked for me and I'm so thankful! A lot of chronically ill people are strong proponents of either full-on western medicine or other less common routes. I think it's different for every person because each body is different, but I've experienced the best results when both methods are combined. What works the best for you? What I've still been struggling the most with is my tailbone pain. It's been about 1.5 years since it's started, but I'm happy to report it is getting better with the help of pelvic floor physical therapy! Hopefully being able to go to PT consistently over the break will be the push my tailbone needs to fully heal. 

I feel like I've been rambling a lot, so I'm going to end this post here. Now that I'm going to be on winter break for about a month, I'm going to be posting on here more and I've been posting on my Instagram pretty frequently (@endoisnottheendblog). I hope you all are happy and healthy and are enjoying the holiday season with loved ones!

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ORGANIZATIONAL TIPS!

 This doesn't have much to do with chronic illness, but I want to share my organizational tips with you today. However, these methods help me to have everything prepared in case I'm having a bad pain day or I'm just plain tired (which is a lot of the time). Let's get started:

1. GET A TO DO LIST: This will literally save your life. I don't know how I got anything done before I had one. 
2. SET OUT EVERYTHING THE NIGHT BEFORE: I try to get my outfits set out and my backpack packed up the night before in case I need to take it slow in the morning.
3. USE A PLANNER: This will be your best friend if you're busy like me. Especially if you're a student, it's the best have all your assignments and activities in one place. 
4. PLAN OUT TIME IN THE DAY TO DO SELF CARE: For me, this means setting aside time to do all the activities from my pelvic floor physical therapy because I know they always help me feel better. It can be different for every person though!
5. CREATE FOLDERS IN YOUR EMAIL: This is something I didn't think I needed to do for the longest time, but once I did, it made finding old emails soooo much easier.
6. CREATE FOLDERS IN YOUR FILES: Similarly, this is so helpful and I have folders for literally the smallest things. When you're constantly turning in assignments, it's so helpful. 
7. ORGANIZE YOUR DESK: Having an organized workplace really does make you more productive and efficient.
8. HAVE A CLEAN ROOM: I know this sounds weird, but especially if you're working in the same place as you sleep, I find it so important to my productivity to have a clean room and made bed. If I don't, it just stresses me out and I'm not as focused on my work. 

I hope you found these tips helpful because they are really have gotten me through college!

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Back to School with a Chronic Illness- Tips

 It's that time of year again when all of us students are getting in the swing of school. I know I certainly am. I know better than most people how hard going back to school with a chronic illness is, so today I wanted to share the tips I've developed over the last five or so years of going back to school with a chronic illness.

On good days, try to get a lot of work done so you have more time to relax on bad days- I always try to get ahead on good days because I know there's eventually going to be a bad day where I'm not going to want to do any schoolwork 

See if you can get accommodations through your school- especially if you're in college, I've found this to be incredibly helpful with living and diet accommodations

Dress as comfortable as possible to make it through class- no one's really paying attention to you that much to care what you're wearing (and if they are they need to get a life)

Always have pain relievers with you on the go- whether it's ibuprofen, icey hot packs, or a Tens Unit, I suggest keeping it in your backpack with you at all times in case you start having a flare-up

Let your teachers/professors know what's going on if need be- I have found all my teachers/professors to be extremely understanding when I'm having a hard time (but they can't give you any help if you don't ask)

Get involved in clubs and activities- this has honestly been my saving grace since I was diagnosed with endo! Like I've said previously, being busy is a pain management strategy for me because I don't have a lot of time to think about how I'm in pain. When I don't have anything to do is when I feel the worst.

But also know your limits- don't completely overschedule yourself so that you never have time to relax because that won't be helpful to your mental or physical health 

Lastly, your health comes first- If you really can't make it to class one day because your pain is too bad, then don't go because you could risk making everything worse. Luckily online class has become very popular, so try and see if that's an option, or just get notes from a classmate. It's really not the end of the world (just don't get into a habit of missing constantly)

I hope all of you who are in school are having a great start to the school year and it has been pain-free so far! If you ever need any advice, remember my DMs are always open :)

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Back to School!

Some of you may have noticed that I took a month off from posting and that’s because the beginning of school has been crazy. The day I moved into school, I barely had any time to unpack because I had to go right to rehearsal for the choir I’m in and that pretty much lasted the rest of the day and the rest of the weekend. Does anyone else get super stressed when all their stuff is in boxes or not in its correct place? Well, I do and that’s what I was feeling like for several days before I had the chance to finally finish unpacking and decorating. Then it was time for classes to start. The good news is that I love all my classes! All my classes are within my major and minor, so I’m never bored and always learning something new. I don’t know if you know this about me, but I LOVE learning, it’s probably one of my favorite things which is why I love college so much; I get to learn about topics I’m actually interested in, unlike most of my classes high school. 

I mentioned in my previous post that I took on a lot this semester and I wasn’t sure how I was going to manage everything. Well, it’s been going pretty well so far! It was kind of a pain getting my schedule all worked out so I could be at every club meeting or rehearsal, but thankfully, I did it and this week everything was finalized. Last weekend, I had the honor of singing the National Anthem at the home opener football game at my college and it went so well! I’ve been singing the National Anthem at events ever since middle school, but I’ve never sung it for my college before, so I was a little nervous. But the President of my college said it was amazing (go me!!). 

I was able to get a single room this semester because of my medical accommodations and needing the privacy to do my pelvic floor physical therapy tasks, and that has been working out very well. While I miss having a roommate, I know I made the best decision for my health and that my body is definitely going to thank me for that this semester. With that said, I haven’t had any big flare-ups yet which I’m very happy about. Stress is one of my biggest triggers, so when I feel like I’m about to get overly stressed, I try to take a minute and relax so I don’t cause any other issues for myself. 

I was finally getting into the swing of things this week, then I got a cold. I was actually pretty scared at first that it was COVID, but I was tested and it's not thankfully. It's so weird how "normal" sickness hasn't really been a thing since the pandemic started because of masks and physical distancing, but as the world opens back up, I guess so does our susceptibility to other illnesses. Like this cold, you are always going to have things that interrupt your plans, but try to find the good in everything. Luckily this cold hit me over the weekend, so I'm going to rest up so I won't have to miss any classes next week.

If you are going back to school right now, I know it can be a very stressful time. My biggest piece of advice is to learn your triggers so you can try to avoid setting them off. Obviously, it’s not going to be perfect, but at least you are trying to do what’s best for your body. Remember, you can do this and endo is not the end!  

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Chatty Catch Up (COVID, School, Keeping Busy, and Health Update)!

 I've been really busy with work this week and getting ready to go on vacation next week, so we're doing a quick, chatty blog post today with no real rhyme or reason, but sometimes those are the best ones :)

I first just have to say that summer is going by SO FAST! I feel like I just got out of school, which was at the beginning of May, and now I'm starting to prepare to go back to school. Although I am very excited to go back to school with hopefully fewer COVID restrictions than last year, of course, I will follow anything they ask us to do if it means I get to go to class in person. Luckily I go to a small school, so it is a little bit easier to manage and mitigate the spread of the disease. My school is also requiring the vaccine for everyone unless they have a medical or religious exemption. I know that is a controversial topic, but I honestly appreciate it being immunocompromised. How is your school/work handling the vaccine? If you are immunocompromised, are you happy with their decision?

That brings me to my next point. It's now being speculated that the CDC is going to recommend we start wearing masks again even if we are vaccinated. I honestly don't know how I feel about this, but I always want to be as safe as possible, so I'm just going to follow whatever the experts say to do. 

Switching gears, I've been thinking a lot about the fall semester and how much I've agreed to take on and it is honestly very daunting. I'm in four clubs at school and I have a leadership role in all of them. I'm starting my volunteer work as a peer health educator which I'm very excited about. I get to move in early and start all the training for that in only a few weeks! I'm hoping to get my job back this semester as well. I have student employment as a receptionist, but I wasn't able to work all of last year because my office wasn't able to physically distance. Then finally, I agreed to stay on with my internship this fall! While this is many things I've agreed to do on top of school work, I love all of them and can't imagine giving any of them up, so we're just going to make it work. 

I find that keeping myself busy is actually a very effective form of pain management and I've used it since I was diagnosed with endometriosis at the beginning of high school. It sounds so weird and I don't know if anyone else is the same way, but I feel like I feel worse when I'm just sitting around doing nothing. I think it's because I can actually focus on my body and not just ignore the pain since I'm so busy. 

I've still been working hard at pelvic floor physical therapy this summer while I'm home. I have all my PT tasks I have to do every day written on my to-do list so I can make sure I'm getting them done. (Side note, I seriously cannot live without a to-do list now. It's kind of a problem but a good problem). Just like in the winter, I'm hoping to make even more progress before going back to school. I said this on my Instagram, but I finally brought up my tailbone pain to my primary care doctor and she referred me to an orthopedist! I'm in the process of having all my medical notes sent over from my pelvic floor physical therapist and my chiropractor, then I'll be all set for my appointment toward the middle of next month. I'm feeling hopeful because I will probably be able to get an x-ray and MRI so we can pinpoint the issue.

I think I've talked long enough and you've all gotten the rundown on my life as of right now, so thank you for reading if you've made it to this point, and feel free to DM me if we want to chat about anything!

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WHAT IS CUPPING THERAPY?

 

Many of you have heard me talk about cupping therapy (or cupping) here and on my Instagram, but I've learned that most people don't know what it is. I was first introduced to cupping when Michael Phelps made it popular by putting his circular bruises on display at the Olympics. 

Cupping is a form of alternative medicine that has become popular over the last few years. I started using this method in pelvic floor physical therapy over the winter to help with inflammation and pain management in my back and tailbone. Still, people use it for many different reasons. So you can get a better understanding of cupping, and why it's helpful, I'm going to bring you through the basics.

WHAT IS CUPPING THERAPY?

Cupping therapy is an ancient form of alternative medicine that originated in China.

HOW DOES CUPPING WORK?

A therapist will put special cups on specified spots and create a suction to the skin and leave them there for however long they deem necessary. 

WHY DO PEOPLE USE CUPPING THERAPY?

There are many different reasons why people use cupping therapy, including:

• Pain
• Inflammation
• Blood flow
• Relaxation and well-being
• Muscle tightness

It has been compared to a deep tissue massage.

DOES IT HURT?

I decided to include this question because looking at pictures of cupping can be pretty offputting, so I wanted to share my experience. There are many different suction levels, so you must communicate with your therapist about what is too much, too little, and just right suction for you. However, if you are really trying to get the full effects of the cups, you can put them on a little tighter, and it will hurt at first, but after 30-60 seconds, the pain will go away. I haven't gotten up to the level of bruising you see on Michael Phelps; in fact, I've only ever had bruising one time because everybody is different and can only tolerate so much. But the goal is to add a little more suction each time so you can make progress.

WHAT DOES RESEARCH SHOW?

While there needs to be more and better research done on cupping, it has been known to help those with:

• Blood disorders 
• Rheumatic diseases
• Fertility
• Skin problems 
• High blood pressure
• Migraines
• Anxiety and depression
• Bronchial congestion
• Varicose veins 
• Overall muscle relaxation

Cupping therapy definitely isn't for everybody, but if you are looking for another method of pain management, I certainly recommend it! I always leave my appointments feeling so relaxed and in a lot less pain. But remember to always drink a lot of water after because it's sucking a lot of toxins out of your body. 

Source: https://www.webmd.com/balance/guide/cupping-therapy

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WORKING 9-5 WITH CHRONIC PAIN

 

Working 9 to 5 is something brand new to me that I started last week. I'm working two jobs this summer so obviously, I've had to learn how to manage this. Working 9 to 5 for the first time is challenging for everyone, but then you add in having to deal with chronic pain and it makes adjusting to this new schedule a lot harder. I want to preface this by saying that I love both of my jobs and I can't wait for the rest of the summer because I'm so lucky to be in both positions! However, sitting at my desk for hours on end isn't the best for my pelvic floor region. 

My whole life up to this point I've imagined myself as having a desk/office job in the future because due to my chronic pain, being on the move isn't my favorite thing. Now that I'm sitting at a desk in my bedroom for many hours a day, I might need to reevaluate that vision for myself. I think my ideal situation is where I can sit when I want to and move around when I want to because my body needs both of those things to keep everything in check. Although sitting at a desk isn't the most comfortable thing in the world, I've discovered a few things that have helped me make the best of the situation. 

The first is a laptop stand. This allows you to prop up your laptop so it's at eye level and you aren't breaking your back hunching over it all day. I got mine at the beginning of last semester and I think it's one of my favorite purchases ever. I'm still sitting in front of the computer for the same amount of time, but my back and neck feel SO much better. 

The second tool that has been so incredibly helpful to me for years is blue light glasses. These block out the harmful blue light coming from your computer or other electronic devices and makes having to stare at them all day way easier on the eyes. I used to get headaches all the time from blue light, but I don't anymore because of these glasses!

The third thing is a seat cushion. As I've mentioned here a few times, I've had an injured tailbone for about a year now, so seat cushions are an essential part of my everyday life. I use one on my desk chair at home and school, as well as one in my car. Even if you don't have tailbone or back issues, a seat cushion can still be really helpful for all-around comfort. 

And finally, the items I have purchased most recently, a mouse and mousepad. Not just any mousepad though, one with wrist support so you don't do any damage while using your mouse all day. This is the first time I've actually used a mouse with a laptop, but it's been so helpful because it allows me to sit up straight in my chair and not have to hunch over the mousepad built into my laptop. 

I'm really curious, so let me know on here or over on my Instagram, but how do you work while also dealing with chronic pain? I'm open to any and all suggestions!

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