Saturday, September 26, 2020

SHARING YOUR ENDO STORIES: Part 5 Jonnie

“Hi, I am Jonnie (pronounced Johnny). I am 30 and divorced without a uterus. I was diagnosed with endometriosis while I was in college. At age 24 and by a miracle I became pregnant with my daughter. I had a textbook perfect pregnancy and an uncomplicated delivery in November 2015. It is normal for the body to bleed while healing from pregnancy and delivery but my body deteriorated. I bled for days, weeks, every month for the next four years postpartum. In 2019 the lower back pain was debilitating and I had to request a medical note for work so the administration wouldn’t get mad at me for sitting at my desk while teaching. In tears, at the age of 29, I asked my OBGYN for a hysterectomy. He gently reminded me a hysterectomy would not cure endometriosis but I was seeking relief. Only 22 days after my 30th birthday I had a hysterectomy and only my left ovary was not removed. The pathology diagnosis found Adenomyosis on my uterus and my right ovary was covered in endometriosis scars and a chocoholic cyst. Post-operation my hair stopped falling out, my face no longer looked grey, and I lost all my bloat that I had caused my then-husband of accusing me of gaining weight. Four months after the hysterectomy, my then-husband (who accused me of exaggerating my pain and symptoms for attention) asked for a divorce partly because he didn’t want to live with someone who has a chronic illness and couldn’t give him a second child.” -Jonnie 

Instagram: @jlarson.lchs

Thank you so much for sharing your story, Jonnie!! 




Friday, September 11, 2020

BOOK REVIEW: 100 Questions and Answers About Endometriosis by Dr. David B. Redwine

Like I said in my last book review, I have been reading a lot of books about endometriosis to better educate myself on the disease I live with every day. 100 Questions and Answers About Endometriosis by David B. Redwine, MD, FACOG was recommended at the end of another endo book I read, so I thought I would give it a read. Like the title indicates, Dr. Redwine goes through all the commonly asked questions about endometriosis, making this book a great resource for women just diagnosed with this disease they've never heard of. The book is broken up into eight different parts with patients' experiences sprinkled in. I am now going to go through all the parts of the book so you can get a good idea as to why I recommend this book (all of the following information can be found in the preface at the beginning of the book). 

Part 1: The Basics- 

  • What is endometriosis?
  • What is the endometrium?
  • Can endometriosis occur in males?
Part 2: Symptoms and Diagnosis-
  • What are the symptoms of endometriosis?
  • Do I need to have surgery for diagnosis?
  • Are scans useful in making the diagnosis?
Part 3: Symptomatic Treatment-
  • What is symptomatic treatment?
  • What are medical therapies based on?
  • What if medicine doesn't relieve my pain?
Part 4: Surgical Treatment-
  • Does hysterectomy cure endometriosis?
  • How is intestinal endometriosis treated?
  • Why do women with endometriosis seem to have so many surgeries?
Part 5: Other Causes of Pelvic Pain-
  • What is adenomyosis?
  • What is interstitial cystitis?
  • What is irritable bowel syndrome?
Part 6: Fertility Issues-
  • Can endometriosis cause infertility?
  • Does pregnancy cause endometriosis?
  • Does pregnancy cure endometriosis?
Part 7: Heredity-
  • Is endometriosis heredity? 
  • Is there a gene for endometriosis?
  • Will my daughter get endometriosis if I have it?
Part 8: Final Thoughts-
  • What treatments for endometriosis will there be in the future?
  • Can endometriosis be prevented?
  • Will the confusion about endometriosis ever end?
I recommend this book to anyone who was just diagnosed with endometriosis or has a loved one who just was. This is also a great resource to anyone wanting to learn more and become more educated on the subject, like me. This book answers every question I could ever think of having to do with endometriosis, and it is written by a doctor who specializes in endometriosis, so I know it is coming from a trustworthy source. If you are interested, you can buy the book using the link below and let me know what you think! 

Link: https://www.amazon.com/100-Questions-Answers-About-Endometriosis/dp/0763759236